SEATTLE, Aug. 26, 2024 (GLOBE NEWSWIRE) — EverythingALS is proud to announce the launch of its new mobile app, now available on both the iOS and Android markets. This app represents a significant improvement over the previous version, which was designed exclusively for observational study participants. The new EverythingALS app not only retains its research functionality, but also expands to serve the broader ALS community with enhanced features and services.
A new era of support and commitment to ALS patients
One of the most exciting new features on the app is the introduction of Pathfinders, a service that connects people newly diagnosed with ALS with experienced counselors from the community. Pathfinders are there to help patients navigate the complexities of their diagnosis and provide guidance and support along the way.
Additionally, the app now includes a generative, AI-powered chat resource. This feature is designed to provide timely and accurate answers to common questions about ongoing clinical trials, observational studies, and other important aspects of ALS care. This ensures that patients and caregivers have access to critical information when they need it most and helps them make informed decisions about their treatment and care options.
Research at the heart of it all: A seamless consent process for study participation
The app stays true to EverythingALS' roots as a research-focused organization and introduces a centralized consent flow that offers users a variety of experiences when participating in different studies, including multimodal observation, speech analysis, specific clinical trials, and tracking diet and daily activities. The app seamlessly integrates research and everyday life, making it easier than ever for users to contribute to ALS research while managing their disease.
Collaboration with centers of excellence and data exchange for ALS research
The new app will be launched as a clinical support tool in collaboration with various ALS Centers of Excellence. This partnership ensures that the app is not only a valuable resource for patients, but also a powerful tool to advance ALS research. With the consent of participants, data collected through the app will be anonymized and shared with companies dedicated to researching and developing new therapies for ALS.
The EverythingALS app is now available to download from the Apple App Store and Google Play Store. We invite everyone in the ALS community, from those newly diagnosed to long-term patients and caregivers, to explore the new features and benefits of this comprehensive app.
About EverythingALS
EverythingALS is committed to advancing the discovery of new treatments and cures for ALS through innovative research and community engagement. By using cutting-edge technology and fostering collaboration among patients, caregivers, researchers and physicians, EverythingALS aims to make a difference in the lives of people affected by ALS. For more information, visit www.EverythingALS.org or contact [email protected].
Cassandra Weller
Asylum PR
855-462-7958
Photos related to this announcement are available at:
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EverythingALS App
Home screen of the new app with navigation to the latest expert discussions, AI-powered support and research opportunities to generate citizen-oriented data and insights on disease progression.
EverythingALS App
In-app opportunities to participate in studies.
